People Always Ask Why I Look Like This, and Some Even Stare at Me – Lady Born With Goldenhar Syndrome Laments

Nineteen-year-old fraternal twin sisters Liz and Maddie Adams from New York are touching hearts across social media after opening up about their unique journey growing up together.

While the sisters share an inseparable bond, Liz was born with Goldenhar syndrome, a rare craniofacial condition that resulted in a missing ear, an underdeveloped eye, an underdeveloped jaw, and facial asymmetry.

Despite the challenges she has faced since childhood, Liz has continued to inspire many through her confidence and determination.

During an interview with Truly, Liz spoke candidly about the questions she regularly receives from strangers because of her appearance.

She said:

” I am missing a ear on my right side, my right eye is under developed my jaw is underdeveloped”

Liz explained that growing up was not always easy, especially when other children questioned why she looked different.

She recalled:

“We always used to play princesses all the girls in my class and there wasn’t a princess for me to play and i get hit with questions that what’s wrong with your face ow why do you look like that.

‘When i was 4 years old i didn’t know how to answer that kids don’t know how to include people that looked so different and that was when i realised “Oh my gosh” I look really different, I really didnt start to have a lot of self confidence until High school, I found theater and I loved being on stage, i am so used to people staring at me but the beautiful thing of being on stage is that they are staring at you for a good reason so thats where my confidence came from”

Maddie shared that she never noticed any difference between herself and her sister until they both started school.

She said:

“As a kid I never realized that liz looked different until we got to school and I realized that other kids had no idea why she looked the way she did or what the story was”
Liz also revealed that she continues to receive insensitive questions and negative comments, especially during livestreams.

She said:

“I get a lot of questions like what is wrong with my face and that might seem like an harmless question but its the connotation that different equals wrong… I get people asking ‘why do you look like that why were you born’ really nasty comments like that”

Despite the negativity, Liz hopes people will begin to see beyond physical appearance.

She added:

“I wish people would know that people with facial differences can live happy lives we can be happy with the way that we look I think beauty is a feeling rather than a characteristic It is not about what you are wearing or how you look its about how you feel”

Maddie described Liz as one of the strongest people she knows and praised her resilience throughout the years.

She said:

“I admire liz’s courage, I admire her perservance and also her outlook on life,eventually i think we would branch out and do different things i think in a perfect world we would work together in some capacity i think we would really make some great team”

Liz became emotional as she reflected on the unwavering support she has received from her twin sister.

She said:

“I dont know if i would be here if i didn’t have Maddie as a sister she has been my bestfriend my therapist, she has just walked through life with me the whole time and i am so grateful and to have such a fierce advocate and protector next to me has made this condition so much easier I think everything happens for a reason and i think she was meant to be my twin to help me out”

See video below……..