reality
Woman Removes Contraceptive After Developing Measl£s
A woman has shared her frightening experience after developing a severe measles rash that eventually forced her to remove her contraceptive.
The mother, identified as Jayne Walmsley, said she initially noticed a rash spreading across her face. At first, she assumed it was either chickenpox or an allergic reaction.
However, as the days passed, the condition continued to worsen, becoming increasingly severe.
She explained that the rash became so intense that her face turned bright red, making her feel as though she had suffered chemical burns.
Concerned about her condition, she visited A&E, where she received a diagnosis that shocked her—Measles.
She said: “I couldn’t believe it.
“Measles in this day and age?
“I was so shocked that at the [then] age of 35, I had measles.
“I thought this was only something Victorian kids had to deal with.
“I didn’t know anybody who had it.
“I was the first case I’d known of in 35 years.
The nurse was as shocked as I was at how severe the rash was.”
“I considered chickenpox, but they didn’t seem to be the same shape, and I’d already had chickenpox twice as a child, so I was hoping to rule that out.
“I’d also had shingles in my 20s and it didn’t look like that either – these were bigger.
“I thought it must be an allergic reaction to some of the harsher cleaning products I had used when I moved in and started cleaning.
“I took antihistamines, but there was no change.
“Each day I woke up, it just tripled again.”
Jayne described the spots as “very red, raised and itchy” but she had no other symptoms, so was perplexed.
“It wasn’t just a rash – it looked like I’d had a chemical burn.
“The rash was eating its way across my skin and was wrapped around my forehead.
“It had gone down my neck, covered my ears, and was even in my ears.
“My lips were so swollen they were beginning to crack.
“The spots were showing up on my chest and back, all the way down my torso.
“They had also accumulated in one large, square, irritated lump under my contraceptive patch.
“I took it off and placed another one on my thigh.
“When I looked in the mirror that day, my face had become so distorted and swollen I hardly recognized myself.
“It was so itchy.
“Typically, I have a very pale complexion, but at this stage, I looked like a tomato – I was bright red.”
“I remember walking into the waiting room and everyone stared at me.
“I was so embarrassed, and in that moment, I realised how severe it actually was.
“It felt like I had two heads.
“One person literally got up and moved away from me because they didn’t want to sit in my vicinity.”
“Over the next week, I had more spots than a pack of Dalmatians – I was completely plastered in them.
“No amount of moisturizer helped at all; calamine lotion only helped for a matter of seconds.
“I would sit in a cold bath for hours just to ease the itching.”
“I couldn’t believe it – I did so many tests because it wouldn’t sink in.
“My fiancé and I had talked about having a child in the future, but it wasn’t in our plans for that year.
“Given my age and the fact that I have PCOS, I never considered that I would get pregnant so quickly – I assumed it would be a much longer, more difficult journey when we were ready.
“We were both so happy, even though it wasn’t planned.
“I was very anxious, though – you have to wait until 10 weeks to get in with the midwife, and I had concerns that the measles may have affected the baby in some way.
“We went for a private scan at seven weeks and, thankfully, everything was OK and looked normal.
Inspiring people with her condition, she said: “What I want people to realise is that this disease is back, it’s real, and it’s not just children that get it.
“I’m actually so glad I was vaccinated as a child.
“If I wasn’t and I caught it, I dread to think what the outcome would have been.
“With the protection of the vaccine, the illness was clearly less severe in all aspects other than the rash, which was still devastating.
“I would not wish this on anybody, let alone a child.
“I will absolutely be vaccinating my son, Jude, to protect him.
“If everyone is vaccinated, it lowers the risk of this type of thing happening to others and protects them if they get it.
“Don’t assume that because everyone else is vaccinated, you’re covered – we all need to do our part.
“Measles is back, and it’s brutal.”
reality
My Breasts Keep Growing Every Day and I Can No Longer Sleep – Woman Cries Out Over Severe Back Pain
A woman identified as Summer Roberts, whose breasts reportedly weigh a combined 27kg, has opened up about the severe pain and difficulties she has experienced because of their size.
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Summer revealed that she was diagnosed with macromastia, a condition characterised by excessive and disproportionate growth of breast tissue. The condition can cause chronic pain in the back, neck and shoulders and may interfere with everyday activities.
She said the condition has affected her daily life for years, but she did not receive a diagnosis until about four years ago.
Speaking to hosts Cat Deeley and Ben Shephard, Summer explained that her breast growth began when she was just seven years old and became particularly dramatic when she was 25.
She said:
“They’re quite heavy but I think because I go through it every day, I don’t really think about it. But seeing it, it is really crazy.
“I didn’t get diagnosed until, like, four years ago here, and then I went to America and got told more about it but they told me that it is all hormone based.
“Macromastia is all to do with your hormones, so they kicked in when I was seven, and then that’s when they started to grow. And then when I was 25 again, that’s when they grew 11 sizes in a year.”
Summer also revealed that she had visited several doctors throughout her teenage years because of the unusual growth, but she was repeatedly told that it was simply part of puberty.
She said she began seeking a breast reduction when she was 14, but claimed that doctors focused on her body mass index rather than the weight of her breasts.
She added:
“I was at the doctor’s throughout all of my teens, constantly, and they would just say it was, like, puberty, nothing serious.
“I was trying to get reductions from when I was 14, and they would tell me that my BMI’s too high, because my boobs weigh too much and they were basically saying that I was, like, overweight.”
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In an interview with Truly, Linda shared that she undergoes lip filler procedures twice a month in her pursuit of a highly exaggerated look. So far, she estimates that she has spent over $50,000 on cosmetic enhancements.
Despite growing criticism and online backlash, Linda says she is not planning to stop anytime soon
How she had always wanted to undergo the surgery, she said: “When I was younger i had always had the plans to get everything done not just my nose but my whole face as soon as i got my opportnity, i got my nose done i was 24 when i got my nose done
“I cant really count how many enhancement i have done cause i have had so many including Rhinoplasty, Lip fillers, chin fillers, jaw fillers undereye filler, cheek filler P threads, Botox In my forehead also botox to lift up my eyebrows and also full sculp in my lower abdomen and fat cativtation on my arm i have spent in total $50,000 over the years
“I am very happy with my lips but i would be happier if i went bigger and bigger I want my lips to cover my whole face”
She continued: “When i started getting fillers i was getting once a month and i started getting it twice a month and i have had so much lip fillers done that right now clinics rejects me here in the Midwest so every time i want to get lip fillers, I always have to try to places like florida where they are very accepting of people who look like me who have gotten alot of work done I just want to be a lip for a face and nothing else”
See video below………
reality
He Started Forcing Me to Be His Girlfriend – Woman Reveals How She Survived Acid Attack After Rejecting Man at 16
A Kenyan woman identified as Benita, who survived an acid attack, has opened up about the horrifying incident she experienced after rejecting a man who wanted her to become his girlfriend. Get the latest updates on our WhatsApp channel.
Benita was just 16 years old when the attack happened. Speaking during a conversation with the BBC, she recalled how the man lured her away from the main road before attacking her with a corrosive substance.
According to Benita, the man had repeatedly pressured her to accept his advances, but she turned him down because she was not ready for a relationship.
She said:
“i said oh this is what you wanted. I said no i heard something like splash of something from the head there (Her back head) so he just splashed it like that. the hot thing in it was like a chocking smell so when i turned like this (Face-to-face) he timed me so it’s entered my face plus inside the eye oh wow when it reached there, i could not think of anything”
The attack left Benita with serious injuries, including damage to her face and eye.
See video below………
reality
Surrogate Mom McKenna West Reveals Baby Is in Critical Condition After Heart Surgery After Refusing to Abort
According to TMZ, the baby underwent an open-heart operation known as the Norwood Procedure after being born with a serious heart condition.
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The case has attracted attention because West previously refused to terminate the pregnancy after doctors discovered that the baby had hypoplastic left heart syndrome, a rare and serious birth defect in which the left side of the heart is underdeveloped and unable to pump blood around the body properly.
It was previously reported that the baby’s biological parents, Nasheen Gilkar and Omar Ahmed, filed a lawsuit against West weeks before she gave birth after she refused to terminate the pregnancy.
According to reports, the couple’s agreement with West contained an abortion clause that allowed the pregnancy to be terminated if medical problems involving the fetus were discovered.
The couple later sought $100,000 in damages from West, claiming that she had breached the agreement.
West, however, continued with the pregnancy and eventually gave birth to the baby, whom she named Gabriel.
Following the birth, West began preparing for a legal battle over the child’s parentage.
Her attorney, Lincoln Wilson, said West wants to become Gabriel’s legal parent because she gave birth to him in Texas.
“She is seeking parentage of the child because she gave birth in Texas, and in Texas, if you give birth to a child, it’s your child,” Wilson said.
reality
I Was Very Addicted to Sunbeds – Ellie Shaw Reveals How Years of Tanning Left Her Battling Skin Cancer
A woman identified as Ellie Shaw has opened up about her battle with skin cancer after doctors discovered melanoma in a suspicious mole on her body.
Ellie revealed that she had become heavily dependent on sunbeds, spending about 15 minutes tanning every day for three years despite knowing that excessive exposure to ultraviolet (UV) radiation could damage her skin.
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She said her desire to maintain a tan made her ignore the possible consequences.
“I was very addicted to sunbeds.
“I knew the risks but I ignored them because sunbeds made me feel good.
“I’m very pale naturally so I wanted a nice tan and to feel better about myself.
“I noticed the mole on my back, darker than my others, in early 2025.
“I knew something wasn’t right so I booked a doctors appointment straight away.”
Doctors Initially Said the Mole Was Nothing to Worry About
According to Ellie, she initially sought medical advice after noticing that the mole looked different from the others on her skin.
She was initially reassured that there was nothing to be concerned about. However, after noticing a scab developing over the mole, she decided to return to the doctor.
“I went back to the doctor and they said they weren’t concerned but they referred me to get it removed.
“I wanted the mole off my body.
“I went to the clinic to get it removed and they were trying to convince me not to have it removed because it would leave me with a scar.
“I asked them to take it off and a month later they said it was melanoma.
“I was in shock.”
Ellie was eventually diagnosed with stage 1A melanoma, an early form of skin cancer that is confined to the skin and is highly treatable when detected at this stage.
She said doctors later explained that delaying the removal could have resulted in a much more serious situation.
“I thought I wasn’t going to make the next two years of my life.
“I was so lucky because it was stage 1A.
“The doctor said if I’d left it any longer then it would have been a different story and they could have been telling me I had two years left to live.
“Once it goes past stage 1, it starts spreading across your body and it will kill you.
“I’m so blessed I’ve got another chance.”
Ellie Undergoes Further Surgery
After the melanoma was discovered, Ellie underwent another operation to remove a larger area of tissue around where the mole had been. The procedure was carried out to ensure that any remaining cancerous cells were removed.
She said the experience has left her with a permanent scar and a strong sense of regret over her previous use of sunbeds.
“I’ve got a fat scar on my shoulder.
“It’s never-ending because once you’ve been on the sunbeds, the damage is done.
“I really regret using them.
“If I could talk to my 19-year-old self, I’d warn her how dangerous they are and tell her not to use them.
“It’s not worth the risk.
“I’m so careful when I’m out in the sun now and still have skin checks.
“I think they should be banned and I want people to think before they start using sunbeds.
“People don’t realise how dangerous they are.”
She Urges Others Not to Ignore Changes on Their Skin
Ellie now regularly checks her skin and has encouraged other people to pay attention to changes in moles or other unusual marks.
Looking back, she believes listening to her instincts and insisting on having the mole removed may have played an important role in detecting the cancer early.
“If you ever have a gut feeling that something isn’t right, don’t ignore it.
“I’m so grateful I didn’t listen when they tried to persuade me not to have the mole removed.
“I actually don’t know where I’d be today if I hadn’t trusted myself.
“Going with your gut feeling could save your life.”
reality
Blind Man With Tattooed Eyeballs Reveals He Had Head Implant Surgically Removed After Severe Infection
According to him, one of the metal implants became severely infected, eventually forcing him to undergo surgery to have it removed.
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Speaking about his body modifications and the experience, he said:
“My eyeball tattoos, my split tongue, and most of my tattoos, I don’t regret them at all.
“They were conscious decisions, made after I had already lost my sight, and they helped me reclaim a sense of control and identity that the disease had stripped from me.
“The transdermal implants, the metal pieces on my head, are a different story.
“I didn’t regret getting them at the time, but they now cause frequent inflammation and pain.
“Honestly, I would now prefer to have all of them taken out.”
The man also reflected on the tattoos covering his face, admitting that he would have approached the process differently if he had the opportunity to do it again.
“As for my face tattoos, I wish I had thought everything through more carefully from the start.
“Back then, my motto was essentially ‘full coverage as fast as possible,’ and in retrospect that was a mistake.
“Now I have a bit of a patchwork look on my face rather than one cohesive design.
“I would have much preferred a proper, coherent zombie or monster aesthetic from the beginning.
“I’ve already discussed with my tattoo artist the idea of lasering the tribal parts lighter so we can cover them with something better.
“So the overall lesson, the one I would pass on, is that I should have gone slower, and thought longer, instead of rushing.”
He explained that while he remains comfortable with many of the modifications he chose after losing his sight, his experience with the infected implants has made him reconsider some of the procedures.
reality
I Was Addicted to Alcohol and Drank One-and-a-Half Litres Until My Eyes Turned Yellow – Man Laments
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Toby Winson revealed that his addiction became so severe that he was drinking about one-and-a-half litres of vodka at the height of his struggle.
He also experienced hallucinations and seizures whenever he attempted to stop drinking.
According to Toby, he knew something was seriously wrong one morning when he looked in the mirror and noticed the unusual colour of his eyes.
He said:
“It sent a shiver down my spine.
“I caught a glimpse of myself in the mirror and had to double take.
“The whites of my eyes had turned a murky yellow.
“I must have already been jaundiced, but I guess that happened over time, so I didn’t notice as much.
“Eventually, and I’ll never forget this, I threw what must have been a fifth of a bottle of cider in the bin and called an ambulance.
“I was rushed to hospital where they told me I had alcoholic liver disease.”
Toby said his condition and years of addiction had left him feeling hopeless.
“I had lost all hope and didn’t care if I survived or not.
“Alcohol addiction had made me feel worthless and a burden.”
He reportedly spent about a month in hospital while doctors treated him and he continued to deal with the effects of the disease.
Toby said his relationship with alcohol began when he was just 14 years old, when he started drinking vodka.
By the age of 19, he had progressed to secretly drinking vodka every evening, often by himself.
He explained:
“I was addicted to the feeling alcohol gave me.
“It had me in a chokehold, and I couldn’t see a way out.
“I allowed it to become a part of my fixed routine and ignored all the warning signs.
“What I should have done was speak to someone as soon as I started drinking in secret – it could have saved me and my family a huge amount of pain and suffering.”
As his addiction worsened, Toby said he became skilled at hiding his drinking from those around him.
“Addiction teaches you skills that you don’t want.
“It teaches you how to lie, hide things and be deceitful.
Toby also described one of the most frightening experiences he went through when he suddenly stopped drinking.
“For about two days, I was violently ill.
“I remember throwing up so much that I could barely see.
“Then, towards the end of the second day, I started seeing things.
“I could see water dripping down the walls and from the ceiling.
“The carpet became a bed of spiders, and my legs were getting tied up by cobwebs.
“I genuinely thought I had lost my mind.
“I ended up running towards traffic in just my trousers because I thought someone was trying to kill me.
“Eventually I managed to wave down a car that took me to the police station.
“Inevitably, the police called an ambulance straight away as they assumed I was on drugs.
“After explaining how much I had been drinking and that I had just stopped, they immediately knew what was wrong with me – severe alcohol withdrawal.”
Toby recalled how serious his dependence had become, saying his mother was eventually forced to give him alcohol because stopping suddenly had become dangerous for him.
“My mum had to give me the thing that was killing me because it was too dangerous for me to stop.
“That’s how dangerous alcohol is when you are physically dependent, and that’s an example of the awful things my addiction put my family through.”
Toby said there were eventually no periods when he was sober because he had become frightened of experiencing withdrawal symptoms.
“There were no sober periods anymore.
“I was terrified of the withdrawals.
“At this point I was on benefits, and when that ran out I would have to beg or sell stuff – I even sold my fridge-freezer to buy alcohol.
“All I had done with my life was cause hurt and pain to myself and my amazing family, who never gave up on me.
“I was self-destructing, and I genuinely couldn’t see a way out of the pit of addiction.
“Everything was an excuse to keep drinking.”
He described what his mornings looked like during the worst period of his addiction.
“In the morning, would have an indescribable pain in my stomach.
“The first thing I would need to do was crawl to the edge of my bed to make myself sick.
“I had to do this first; otherwise, I wouldn’t be able to hold down the alcohol that would be waiting next to my bed, and I needed to get that alcohol in my system to fight off the withdrawals and burn away the pain in my stomach.
“After downing the bottle, I’d sit as still as possible and wait for the shakes to stop.
“Then I’d get dressed and head out to beg or whatever to get enough money to buy more alcohol.
“I’d need a few three-litre bottles of cider each day and one ready for the morning.
“That horrendous routine was my life for quite a long time.”
Toby said he eventually stopped drinking in August 2016 and began working towards rebuilding his life.
“For such a long time I had been bottling things up, but I had finally started talking openly and honestly – that was the key.
“I would tell anyone who would listen about my battle and recovery.
“I started getting into a healthy routine and exercising.
“Then came small goals.
“To start with, they could be as small as walking the dog, because things like that made me feel normal and part of society again.
“It was by no means easy.
“For years I had been blocking my emotions with alcohol.
“The shame, regret and guilt hit me like a tonne of bricks, and my anxiety was through the roof, but over time this eased.
“After a year or so, the shame was replaced with pride in my recovery.
“I was overcoming something that I thought I could never beat.”
Toby also spoke about how he later struggled with gambling and realised that he needed to use the same approach he had adopted in his recovery from alcohol addiction.
“Having an addictive personality is a blessing and a curse.
“When I put that addictive energy into positive things, I’ve achieved stuff over the last 10 years that I’m really proud of.
“But when I put that addictive energy into things that are bad for me, it’s like a nuclear bomb going off in my life!
“I learnt the hard way through gambling – I thought I could treat it differently to alcohol, but I was wrong.
“My big mistake after that happened was that I didn’t talk about it – I bottled it up and, predictably, it happened again.
“So now, I tackle gambling the same way I tackle alcoholism – by talking openly and honestly about it.
“I discovered that letting everyone know I’m in recovery and speaking or writing about it openly was a powerful tool against addiction.
“I have a huge network of support that knows everything about my battle and that has played such a big part in keeping me sober.
“I’m very open about my journey because talking about it is the most effective tool in my arsenal against addiction.
“I also think that it’s really important that those who are in the depths of addiction see other people have recovered.
“That’s why I shout about it at every opportunity.”
Looking back at his journey, Toby said he has been able to rebuild his relationship with his family and no longer allows the past to define his life.
“I’ve been able to repair the relationship with my family, I no longer dwell on the pain I caused them, and I know all they want is for me to be healthy and sober.
“I’ve been incredibly lucky.
“I genuinely felt that I would never beat alcohol addiction; I thought it would kill me.
“I know there are so many people out there who feel like that right now.
“They feel hopeless and trapped, but I just want them to know there is always a way back, and I’m proof of that.
“Take all the help you can get, whether that’s local alcohol services, counselling, your GP, Alcoholics Anonymous and even the support on social media.
“But the most important thing is that you talk openly and honestly about your addiction.
“Don’t bottle things up. Don’t beat yourself up. The shame and guilt will fade – talking is key.
“It saved my life, and it can save yours too.
“You can beat alcohol addiction, and you can have a wonderful life.”
See video below…
@sobertobywinson We do recover! 🙏💙 Surprisingly, I remember quite a lot about the day I realised alcohol addiction had made me seriously ill. I had alcoholic liver disease at 25 years old. I'm sharing my experience as a reminder of how quickly alcohol can destroy your body. I'm so grateful I survived and was given a second chance. I'm now 9 years and 10 months sober 🙏 #sober #addiction #recovery #sobertok #WeDoRecover ♬ πρωτότυπος ήχος – Μ𝖆𝖗𝖐𝖔𝖘
reality
Meet the Couple Who Have Been Married for 80 Years Without Divorcing After Meeting During World War II
The couple, aged 102 and 101, marked their anniversary with a special celebration attended by family members, fellow residents and staff at their care home.
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Among those present was their daughter, Caroline, as well as Councillor Paul Gardner, Chair of Portishead Town Council, who joined them in marking eight decades of marriage.
Ray and Win first became acquainted in 1943 while Ray was serving with the Royal Air Force in Canada.
Their relationship continued through the war before they eventually met in person.
After the war ended, the couple’s relationship grew stronger and they married in August 1946.
Eight decades later, they remain together, having built a family and shared countless memories throughout their marriage.
Reflecting on their early relationship, Ray recalled a humorous moment during a formal meeting with Win’s parents that convinced him they were well suited.
“We’re very flattered to have the lounge named after us.”
“Be warned – we may be putting a collection box at the door and charging an entrance fee for those wanting to use the space.”
Speaking about how he felt when he first met Win, Ray added:
“I knew she was the one for me when we had a formal tea with Win’s parents, but it was too formal for me, so I threw a handful of jelly at Win.
“Win’s parents thought ‘oh no’ and Win threw some back at me.
“They could see we were well suited.”
The couple’s care home went all out to make their 80th anniversary memorable.
Chef Nick Thick recreated their two-tier wedding cake, decorating it with white icing and red roses, while a pianist played some of their favourite songs.
The room was decorated with bunting, balloons, fairy lights and anniversary cards.
The local Help for Heroes team also contributed to the celebration by donating 80 balloons and a certificate to commemorate the couple’s extraordinary milestone.
Ray and Win went on to have a daughter, Caroline, and later welcomed a granddaughter named Jenny.
In 1961, the couple moved to Clevedon, Somerset, where they discovered that they shared a passion for the performing arts.
From meeting during wartime through a simple pen-pal introduction to building a family and spending eight decades as husband and wife, Ray and Win’s story has become a remarkable example of a relationship that has endured through generations.
reality
People Called Me Satan – Meet Orylans, the Woman Who Was Chased Out of Church Because of Her Appearance
While many people focused on her tattoos and other modifications, Orylans said she was simultaneously going through a deeply challenging period in her personal life.
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She revealed that she struggled with an addiction to whippets, also known as nitrous oxide, during the period, which she said was accompanied by serious health problems, including blood clots in her lungs and the development of cysts in her brain.
But the physical challenges were only part of what she had to endure.
According to her, even entering places of worship did not shield her from such treatment.
She recalled being labelled a demon and the devil by people who appeared to judge her solely because of the way she looked.
Reflecting on the period, she said:
“it actually been a crazy year for me more of a life changing year i think i would say, it is so crazy because so many people say like, I look like a demon like i am a devil like all this stuff and it like crazy because this year i actually found demons and the devil and like i know all about that stuff now and i went through a really hard time this year i got addicted to a substance called whippets or nitrous oxide and that was basically what i spent my whole year doing.” She said
Orylans also recalled the assumptions people made about her religious beliefs.
She said some people concluded that she was against God or associated with evil simply because of her appearance.
According to her account, the judgment became so severe that she was even chased out of a church because of the way she looked.
Recalling the experience, she said:
“One of the biggest assumptions is that I’m demonic and don’t believe in God.
“That I’m the devil, the spawn of Satan, but it’s literally so far from the truth.”
Rather than allowing the criticism to dictate how she sees herself, Orylans said she has come to view some of the hostility directed at her as a reflection of the people making the comments.
She added:
“I get a lot of hate – but I just think they’re looking at a mirror of themselves.
“I can never see myself going online and trolling someone they don’t even know. I just find that disgusting.”
reality
Heavily Tattooed and Blind, Yet People Say I’m Faking It – Man Who Tattooed His Eyeballs Cries Out
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Identified as Juliusz, the man said people frequently make hurtful comments about his appearance and, in some cases, accuse him of causing his own blindness.
According to his account, he was diagnosed with Neurofibromatosis Type 1 (NF1), a genetic condition that can cause tumours to develop along nerves, including the optic nerves responsible for vision.
The condition began affecting him during childhood. He said problems with his eyesight were noticeable from a young age, with his left eye becoming essentially blind during childhood before the vision in his right eye gradually deteriorated over the years.
One of the claims he finds most upsetting is the suggestion that his eye tattoos caused his blindness.
Lamenting the misconception to needtoknow, he said:
“The cruellest false claim of all is the recurring accusation that my eye tattoos caused my blindness,”
“This is medically impossible, and it is deeply distressing to hear it repeated.
“My blindness was caused by optic atrophy from optic gliomas in NF1, documented by multiple eye specialists, including at the University Hospital Düsseldorf, with medical certificates from October 2025 and January 2026 confirming the cause.
“The tattoos were performed years after I had already gone blind.
“The timeline alone makes it impossible.
“The medicine makes it impossible and yet the myth persists, and it wounds.”
Juliusz said his vision loss was not sudden. Instead, it developed over a long period, beginning in childhood and progressing gradually.
He added:
“The decline began in childhood. There were vision problems noticeable from a very young age.
“My left eye was essentially blind from early childhood.
“My right eye then deteriorated gradually over many years.
“It was slow, creeping, progressive, never sudden, which is part of why it is so hard for outsiders to understand.”
He said his appearance, combined with his visible disability, often attracts unwanted attention and verbal abuse from strangers.
“I face hostility in public on a regular basis, dehumanising verbal attacks because of my appearance combined with my visible disability.
“I have been called things like devil or the devil’s work, which stings all the more given that I was raised strictly Catholic.
“As a blind person, I already feel particularly vulnerable, and on buses and trains I often feel genuinely unsafe, with a real fear of being attacked, both because of how I look and because of my disability.
“Some people seem provoked or made uncomfortable by the combination of a visible disability and an extreme appearance.
“The prejudice and the false narratives are what hurt most.”
For Juliusz, some of the most difficult encounters occur when strangers question whether he is genuinely blind.
He said people have confronted him despite seeing him use a white cane, leaving him feeling humiliated and misunderstood.
“People accuse me of faking my blindness, to my face, while I’m standing there with a white cane, unable to see their features or read their expression.
“That is profoundly invalidating.
“Strangers say things like ‘You’re just pretending, you’re not really blind,’ or ’You can see perfectly fine, drop the act’.
“It’s deeply shaming, especially when the truth is that I genuinely only perceive light and shadow.
“Let me make this as plain as I can: nobody walks around with a white cane for fun, or as a decoration.
“I am not pretending. I am blind.”
Despite the challenges surrounding his appearance, Juliusz views his body modifications as a personal form of expression and ownership.
He explained that, after losing the function of his eyes, he made a conscious decision to transform them according to his own wishes.
Speaking about his experience with the disease, he said:
“The disease had taken the function of my eyes from me.
“So I took the organ itself and made it entirely my own, on my own terms.
“The way I think of it is simple, if my eyes could no longer show me the world, then they would at least belong completely to me.”
His decision, however, does not mean he has stopped feeling the consequences of losing his sight.
He openly acknowledged the difficulties that come with blindness, including missing the ability to experience visual moments independently and navigating ordinary activities without sight.
“It feels sh*tty.
“I miss seeing things, sometimes very much.
“I miss being able to look at a festival stage and take in the whole atmosphere, all that energy, with my own eyes.
“Shopping independently no longer really works.
“Public transport is very challenging.”
Juliusz said he has chosen to speak publicly about his experience because he wants people to understand the difference between his appearance and the medical condition that caused his blindness.
For him, the issue is not simply about defending his decision to have extreme body modifications. It is also about being treated with dignity and having his disability understood accurately.
Explaining why he continues to tell his story, he said:
“I share it because I want to be truly seen as a person living with an incurable genetic disease that took my sight by destroying my optic nerves.
“I want to be seen as someone who expresses himself artistically through extreme body modification on his own body and as a human being arguing for medical accuracy, for proper disability recognition, for accessibility.
“I want for an end to harmful prejudice and false narratives, whether they come from an authority, from a stranger on a tram, or from anywhere else.”