Teenager born with Incurable disease is dead

Popular South African teenager Beandri Booysen, who inspired many while battling Hutchinson-Gilford Progeria Syndrome, has sadly passed away.  

Progeria is a rare and fatal genetic disorder that causes rapid aging in children, typically limiting life expectancy to around 14 years. Remarkably, Beandri defied these odds, living five years beyond that milestone before her passing.  

Her mother confirmed the heartbreaking news on Facebook, expressing gratitude to fans worldwide for their unwavering love and support for Beandri throughout her journey.  

Announcing the news, her mother wrote: “It is with deep sadness that we announce the passing of Beandri one of South Africa’s most beloved and inspiring young women who always radiated hope and joy.

“It is with deep sadness that we announce the passing of Beandri one of South Africa’s most beloved and inspiring young women who always radiated hope and joy.

“Beandri was not only known for her vibrant personality and infectious laugh but also as the last surviving individual in South Africa living with the rare genetic condition Progeria.

“She became a symbol of awareness for Progeria and other special needs children using her unique spirit to inspire thousands of people worldwide. She never stopped fighting.”

Earlier this year, Beandri said: “I’ve been living with Progeria since birth and I am used to it and I’ve learned over the years to deal with all the challenges and surgery.

“I face everything that God brings into my life and I credit my family for my strength and support by raising me as a ‘normal’ child and not one to be seen as different to others.

“This made me stronger and the person I am today. I have a large TikTok presence to try and inspire and motivate those who follow me and keep them positive every single day.

“My goal is to raise awareness about other special needs individuals and show that everyone is different and unique in their own away and to give strength if I can.”